Why I can’t be Calm…

On January 19, 2012, my husband was in the bathroom vomiting. We called 911, and he was taken to the hospital.

In the hospital, we were given a diagnosis of pancreatitis. Over the next couple days, he got worse, and was transferred to a hospital with ICU capabilities.

In that first hospital he transferred to, they told us his kidneys were shutting down and that he needed to be transferred to a hospital with dialysis capabilities.

We got to THAT hospital.

I went home that night.

The next day, I set up dinner in the crock pot, left my kiddos playing video games with neighbours as emergency contacts and headed to the hospital.

I thought, in my infinite, uneducated wisdom, that we would be going through the same situation we’d been through before.

You see, 3 years prior, he’d had two heart attacks.  A few days in the hospital, and we were home. New regime, new diet, new plan of attack, new medications.  Each time. A few days of driving back and forth between the house and hospital – about an hour each way.

So I thought that this would be the same.

But it wasn’t.

It really really wasn’t.

And just under 6 months and another hospital later I left the hospital for the last time, knowing that I would never be back there again, that my role of being a “patient’s family  member” were over.

Except it’s not.

In just under 3 weeks, my youngest, my baby, my gorgeous amazon woman of a daughter will undergo a craniotomy to remove a brain tumour. In all the reading, all the literature, it says that they will go in, do the surgery, she’ll be transferred to the ICU and then after 3-5 days she’ll be sent home.

3. to. 5. fucking. days.

Are you KIDDING ME?

I’m supposed to be ok with this?

I’m not. I’m not on any level.

3 – 5 days and then she’s sent home?

I don’t know how to make my brain go back to that uneducated, naive view of life that will allow me to say “she’ll be fine. It’s a couple days, maybe a week in hospital then home for recovery.”

BECAUSE THAT DIDN’T HAPPEN THE LAST TIME.

The last time someone I loved went into the hospital they FUCKING DIED.

And so I’m in a constant state of panick. I’m trying desperately to be calm and keep things normal and be positive and upbeat but…

HE DIED.

HE DIDN’T COME HOME.

And I don’t know that I will survive it if she doesn’t.

Life Changes

I miss my husband.

I miss his steadfast, solid, calmness.

I miss being able to lean into him.

I don’t know how to navigate the waters of a contentious relationship with my oldest child without him.  My new husband is angry about him hurting me. He doesn’t have the same attachment my dead husband had.

I don’t know how to navigate the waters of a potential diagnosis for my kid.  I mean – I did it with my husband. I navigated all those moments of discussing it with doctors, but this is my CHILD. The person who helped bring her into the world and he’s NOT here to be all the things I miss about him while I panick and cry and fall apart.

My current husband loves me. He adores me. He’s there for me in every way.

But he has a detachment that allows him to be passionate about the injustices to ME which leaves me feeling like I have to fight on two fronts – angry/frustrated about whatever situation but at times having to defend the situation.

It’s exhausting.

I miss my kid. The one who wasn’t so angry at the world and who I could talk to about everything. He doesn’t get that he and his kids ARE important to me. He doesn’t care that I’m going through my own shit. He doesn’t know. Doesn’t ask. Just sees that I’m not there for him in the way he wants. He doesn’t care what it would have cost me, personally, financially, emotionally to step out of my life to be there in his.

All he sees is I wasn’t there.

And now we’re fighting because of it.

And he’s too angry with the world and at women in general to stop and listen or see my side.  And now I cannot see a way around it or to fix it.

And I miss my husband because he would have been the negotiator. The mediator.  The peace-maker.

My current husband is just angry at the fact that I’m hurting.

I miss him.  My husband who was the rock, the glue in our lives.

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Missing Him Lately

I spend a lot of time with ALC/LTC patients and residents lately.

Helping them with body care, helping them eat, helping them walk, helping their lives have meaning.

Some of them talk.

Some of them don’t.

The ones that don’t, I try to have “conversations” with them… but I’m not super good and it leaves me with time to think.

Would this have been my life if he’d lived? Or would he have recovered to be independent again? Or would it have been, no matter what, the beginning of the end?

The what if’s get me.

What if he’d lived? What if he’d pushed that one more time? What if?

And WHY THE FUCK DID HE HAVE TO DIE?

Why do I have to navigate this world without him who understood me so well? Why do I (as much as I do love him) have to navigate everything with my new husband who doesn’t *quite* get it? Who I have to work at having good communication with?

Why did other people get to survive what he went through and he didn’t?

Why did I have to be a widow?

Why the fuck?

I’ll never have the answers and this will never be a thing I’m *over* because how do you get over losing someone you love so deeply?

Lately it’s been super freaking hard managing the grief. It hits me out of no where and I always feel like crying.  7 years gone. That’s half the time I had with him. I want more.

Stages-of-GriefMark in Fruitvale

Merry Christmas 2018

Every year it becomes more and more apparent that you’re gone. Stupid eh?  I mean, I know you’ve been gone from the moment you took your last breath.

But pictures don’t lie.

I’m taking new pictures, creating new memories, and everything is changing.

But the pictures I have of you are all the same.  There’s no new ones. No Christmas 2012, 2013, 2014, 2015, 2015, 2017 and now there won’t be a Christmas 2018.

Seven fucking Christmas’s without you. Without making memories with you. Without sharing the life we planned.

Seven.

It’s hard to believe it’s been seven Christmas’s without you.

But here we are again, my Love.  A Christmas without you, without the traditions we had, without you sharing in the joy of being a Daddy, and now a Grandpa.

Thank you for the dime I found today. Thank you for reminding me that you’re still here and still around.

I miss you.

Merry Christmas.

Nobody Knows

7 years ago everyone knew me as MarkandJane.

They knew that Mark and Jane were an entity.  They knew Mark’s love of fishing, flyfishing especially. They knew that he had disabilities (although he was careful not to show anyone else how bad it could get).  They knew he adored his kids, and they knew that he was the primary parent in our household.

They knew he was well read, articulate although they might not have known he wasn’t formally educated.

They knew he liked to play World of Warcraft.  I was the only one who knew that he waited until he was alone to do so. He’d tuck me into bed, snuggle for a bit, then get up and go do his thing while I slept.

They knew he was passionate about the environment.  He was angry beyond belief when the train derailed and sanitized the Cheakamus River. And he was heartbroken over it.

They knew he was the go-to guy for all things fishing.

They knew he was an amazing cook who made incredible Bailey’s latte’s.

They knew he and I had an incredible connection, an incredible Love that spans time, distance and death.

And now… I am married to Ryan.  And no one I know up here knows anything about Mark.

How could they? I moved up here a year after he died. I knew no one up here when I moved.

NO ONE KNOWS.

So how the FUCK, if they don’t know… am I supposed to explain to them why I’m crying randomly? Why a stupid song will reduce me to rubble? Why I start leaking for seemingly no reason?

How am I supposed to explain to anyone who sees me in the middle of a grief storm how much it still hurts every. single. day. that he’s gone.

Widows always feel the need to explain… “I DO love my living husband… but…”

It’s horrible. Unless you’ve lived it, how do you explain to someone how much you miss the dead husband even as you’re snuggled up to the live one?

I don’t go looking for grief triggers – but lately they’re finding me. And the leaking has started again.  Randomly, without warning or control.

And at 6 1/2 years out… I look like a mentally and emotionally unstable person instead of a grieving widow.

Which really sucks.

I miss this look:

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I miss the love that shone out of his eyes whenever he looked at me. I see it in all the pictures.  Times I didn’t realize he was looking at me like that.

And so I grieve in this new world of “Mark who?” and hope that the people who catch me at it understand that I’m not emotionally unstable – I’m just missing him.

Birth and Death

My newest grandchild was born two weeks ago at 10:17am.

She was a perfect 9lbs 2oz.

One minute, there was a pregnant daughter with one child… the next, there was a new little human being.

Ok, maybe longer than a minute.  But you know what I mean. It was a shift in our worlds.  She went from momma of 1 to momma of 2.

It seems somewhat surreal… just like when he died.  One minute I was a wife, the next?  A widow.

Life happens in moments.  The moment of birth. The moment of death. The moment of “I do.”

Life happens when you least expect it.  And it’s all intertwined. Changes happen and life continues and you miss someone so fiercely you can’t breathe and you love someone new so fiercely you can’t breathe and it’s ALL THERE AT ONCE.

I miss Mark with every fibre of my being.

I love my grandchildren to the moon and back.

I love Ryan with every fibre of my being.

None of these are in conflict with the other. None of these cancel out the other.

One moment I was a wife, the next a widow.

One moment I was a widow/girlfriend/fiance, the next I was a wife.

One moment my daughter was pregnant, the next I had a new baby granddaughter.

Birth and death and everything in between. Everything changes in a moment.

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I Fucking Forgot

19 year today.

I forgot. Sometime last week I had remembered – but this morning I woke up and the date didn’t register.

Until I looked at my phone and saw the memories.

I tried to put it out of my mind… my husband was laying in bed with me, getting all frisky, and I wanted to get frisky as well.

Except he’s sometimes incredibly perceptive and asked what was wrong.

I’m like.. yah… I’m fine… and tried to kiss him… and then he asked again…and there, in the middle of getting frisky with my new husband, I’m crying over the dead one.

Did I mention how amazing my Sexxy Chef is?

He held me close. Loved me. Let me cry.

And I spent the day in and out of tears and sadness.

But he let me cry. He loved me. He held me while I cried over my dead husband.

Truth is… I’ll never stop loving or missing the dead guy. I’ll never stop missing him or wishing he’d not died.

Especially on days like today.

Happy (would have been) 19th Anniversary my love.  You will always have a piece of my heart. I will love you as long as I live. Thank you for loving me and allowing me to be your happily ever after, until death do us part.

Mar & Jane Wedding